Hi, Remember me? I'm still not 100% health wise, but I am back on track and the end is in sight. I mean that literally. I can almost see correctly again. Just a little double/blurriness when I look far off. In fact, right now I am not wearing the prism and can see my computer screen just fine. So here's the rundown...
The Bad...
not happy with the drug pushing doctor who won't take time to explain ANYTHING! Seriously, I asked him if the high level of antibodies in my blood could indicate a disease other than the one he thinks I have and he just looks at me and says very smugly, well the type of antibodies you have are not present in healthy people. you are very sick, but don't worry, we are gonna get this fixed. EXCUSE ME WHAT??? Did that answer my question at all? I wanted to smack him. Don't worry, I do have an appointment for a second opinion, unfortunately not till June.
I have gained way too much weight because of the meds making me ravenously hungry all the time. Plus they make me tired and I am afraid to exhert myself by doing actual exercise, seeing that normal activity makes my heart feel like it is going to jump out of my chest. (Don't worry, its the drugs, I check my heart rate and pulse on a regular basis)
I'm running out clothes I can comfortably wear.
The Good...
I big puffy heart with glitter love love love my opthomologist Dr, Yang! She LISTENED to me. She cared about my medical history and my similariteis with my mom. She correctly diagnosed what happened to my eye. She knows my mother's longtime neuro-opthomologist, Dr. Purvin. She studied under Dr. P and told me we would watch out for signs of psuedo tumor and that if she couldn't fix me, she would send me to Dr. P. I also heart Dr. Shah, the neurosurgeon who consulted for the intial skull problem they saw on the MRI. He agrees with Dr. Yang's diagnosis on my eye and told me what to watch out for if the skull deformity becomes a real problem.
I went shopping a couple of times at Kohl's (see above clothing complaint) and now have three cute new shirts, two pairs of capris, 1 pair of jeans and two pairs of sandals. All the clothes came from the petitie department. Pants are easy for me to find in the petite section, but shirts that fit right are rare, so it was a big score to find them. Plus, between sales, kohl's cash, and discount coupons I only spent about $85 for all of the above. My last trip was the most profitable, I got two shirts and a pair of capris for less than the original price of just one of the shirts!!
The contracts were up on the cell phones and I got an iPhone. love it. still playing with it. need ideas/ recommendations for apps you can't live without.
I hope you stare just long enough to see the heart that's beating here inside of me. Beyond all the things you may think you know I'm just a kid trying to make it home, that's it. No more, no less ~Mercy me
Saturday, April 17, 2010
Test post
Just testing mobile posting. You may return to your regular web browsing. I repeat, this is only a test.
Sent from my iPhone
Sent from my iPhone
Thursday, January 28, 2010
I am my mother's daughter
WANTED: Normal life, must include good health, enjoyable job, great friends and loving family.
Well, three out of four ain't bad. Don't get me wrong, I am vey grateful for the blessings in my life. I do have much to be thankful for. However, I am dealing with some health issues and the complications from them.
My eyes are playing games with me. It was both of them at first, but now it is mostly my right eye. Which explains why my left eye is now my new favorite eye. Righty is not listening to me.
I say "lets look to the right" and it says, "no, I like the view of your nose better." I say, "lets look straight ahead!" Righty says "what did I just say? You weren't listening were you?" ARRRGH!
As long as I keep Righty covered up, Lefty works just fine, so I have borrowed a trick from my Mom, who dealt with similar issues. Its called a Redneck Eyepatch, i.e. black electrical tape on the right lense of my glasses. I need a "Captain Jack Sparrow" wig or a parrot or something.
In the meantime, I am not allowed to drive or work (doctor's orders). I go back to the doctor on Monday and hopefully will get clearance to go back to work (back to the blessings-I have a dad who is willing to play chauffer) There are still many unawsered questions and I am getting a little stir-crazy, but I know that no one has a "normal" life. It just doesn't exist. So I will count my blessings, be grateful for what I do have and pray.
Tuesday Feb. 2nd will mark the third anniversay of Mom's homegoing. She handled the trials she faced throughout her life with a few tears, a lot of grace and even more laughter. I wanna be like her.
PS Did you know you can magnify your view of an individual web page? Its kinda helpful.
PPS Please forgive typos and misspellings, I'm only working with one eye here people :)
Well, three out of four ain't bad. Don't get me wrong, I am vey grateful for the blessings in my life. I do have much to be thankful for. However, I am dealing with some health issues and the complications from them.
My eyes are playing games with me. It was both of them at first, but now it is mostly my right eye. Which explains why my left eye is now my new favorite eye. Righty is not listening to me.
I say "lets look to the right" and it says, "no, I like the view of your nose better." I say, "lets look straight ahead!" Righty says "what did I just say? You weren't listening were you?" ARRRGH!
As long as I keep Righty covered up, Lefty works just fine, so I have borrowed a trick from my Mom, who dealt with similar issues. Its called a Redneck Eyepatch, i.e. black electrical tape on the right lense of my glasses. I need a "Captain Jack Sparrow" wig or a parrot or something.
In the meantime, I am not allowed to drive or work (doctor's orders). I go back to the doctor on Monday and hopefully will get clearance to go back to work (back to the blessings-I have a dad who is willing to play chauffer) There are still many unawsered questions and I am getting a little stir-crazy, but I know that no one has a "normal" life. It just doesn't exist. So I will count my blessings, be grateful for what I do have and pray.
Tuesday Feb. 2nd will mark the third anniversay of Mom's homegoing. She handled the trials she faced throughout her life with a few tears, a lot of grace and even more laughter. I wanna be like her.
PS Did you know you can magnify your view of an individual web page? Its kinda helpful.
PPS Please forgive typos and misspellings, I'm only working with one eye here people :)
Saturday, January 09, 2010
...randoms...
While I really do not like the snow we have been dealing with lately, I have to admit that it has been quite pretty. Its so cold, that it is not melting. The result is it looks like God took out a big shaker jar of glitter and went crazy!
I would love to have a fireplace. I would then waste hours staring at it.
I am very proud of my Cinnamon puppy! Ok so she is not really a puppy, she is somewhere around 7 yrs. old. and probably weighs around 75 lbs She is living with my sister and brother law right now and they got her out on Thursday when the kids had a snow day and they all played in the snow. She didn't jump on the kids and even pulled them on the tobaggon.
Between being sick, then the holidays, then being on prednisone, I have gained weight. It is not good. I need to shape up literally. I need to cut back on the amount I am eating as well as what I am eating. I also need to get some exercise. The treadmilll has been cleaned off and I have no excuse to not try.
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